A special thank you to Dolly Niles, Executive Director of Quest Research Incorporated for her
excellent presentation and discussion regarding the Clinical Trial process the current state of
drug research.
Below are some links that were mentioned during yesterday's session, that you may
find beneficial:
excellent presentation and discussion regarding the Clinical Trial process the current state of
drug research.
Below are some links that were mentioned during yesterday's session, that you may
find beneficial:
Fox Insight is an online clinical study for both people with and without PD, hosted by the
Michael J Fox Foundation. Volunteers complete a 15-20 minute online survey once every
3 months and the responses are then added to a huge database of information, from which
researchers can then gain unprecedented insight into this disease.
Michael J Fox Foundation. Volunteers complete a 15-20 minute online survey once every
3 months and the responses are then added to a huge database of information, from which
researchers can then gain unprecedented insight into this disease.
Fox Trial Finder is a tool that sifts through hundreds of PD research studies and matches
participants to the studies that are being conducted in their geographic region, and are targeting
their particular symptoms. Here is a handy blurb from the Michael J Fox Foundation on
Clinical Trials: Clinical Trials 101
participants to the studies that are being conducted in their geographic region, and are targeting
their particular symptoms. Here is a handy blurb from the Michael J Fox Foundation on
Clinical Trials: Clinical Trials 101
This is the "granddaddy of them all" clinical trials site. It has information on every clinical trial
hosted in the US for every disease. It also has very powerful filters so you can search for PD studies
within a certain radius of your home, targeting specific symptoms, hosted by a particular site,
in a specific trial phase, and so on.
hosted in the US for every disease. It also has very powerful filters so you can search for PD studies
within a certain radius of your home, targeting specific symptoms, hosted by a particular site,
in a specific trial phase, and so on.
Quest Research Inc.
This is the organization that Dolly is the Director of. They do a lot of trials for PD (the following
excerpt is from their January 2020 newsletter:
QUEST Research Institute
28595 Orchard Lake Road, Ste. 301
Farmington Hills, MI 48334
Phone: 248-957-8940 / 888-QUEST-24Fax: 248-957-8944
The Science of Parkinson's
This is the organization that Dolly is the Director of. They do a lot of trials for PD (the following
excerpt is from their January 2020 newsletter:
"Newly diagnosed and sorting thru your options? Consider a study using a well-known medication for diabetes that they think may help with neuroprotection. Experiencing “wearing OFF” times in between doses of your levodopa? Consider our trial with an extended release medication to keep you ON longer in between doses. Having a little trouble with memory or executive function? Several new medications are being tested for people with Parkinson’s and MCI (Mild Cognitive Impairment). Apprehensive in general because it’s a mystery? Participate in the free genetic test that is thoroughly investigating up to 68 genes that may be linked to Parkinson’s. That study is one visit, no new medications and you’re paid $50!Lastly, we continue to offer studies that are for medications attacking alpha-synuclein – the “bad protein” in the brain that scientists believe led to Parkinson’s disease. This is the most exciting treatment around with one of our medications moving into Phase III this year – this means it’s showing hope and has a good safety profile!"Contact Info:
QUEST Research Institute
28595 Orchard Lake Road, Ste. 301
Farmington Hills, MI 48334
Phone: 248-957-8940 / 888-QUEST-24Fax: 248-957-8944
The Science of Parkinson's
Their tagline is "Plain English information about the research being conducted on
Parkinson's" and this is a phenomenal resource if you want a deeper understanding of the
science behind most of the PD research, Don't be surprised if you find yourself reading posts
several times to fully understand the topic.
Parkinson's" and this is a phenomenal resource if you want a deeper understanding of the
science behind most of the PD research, Don't be surprised if you find yourself reading posts
several times to fully understand the topic.
Hosted by Franks Church, a PWP and former professor, and researcher in Biomedicine.
This is a unique blog in that he shares personal accounts of his "journey with PD" and includes
a fair amount of science in most posts.
This is a unique blog in that he shares personal accounts of his "journey with PD" and includes
a fair amount of science in most posts.
This is an "all news, all the time" type site. It has frequent updates, with an emphasis on the
latest PD research news.
latest PD research news.
may follow into one presentable package. Here is a top ten RSS feed reader's article to help you
get started. I personally like Feedly and Bloglovin, and the screenshot below shows the nice,
magazine-like presentation of my PD feeds.
